Children and Augmentative or Alternative Communication System (AACs). A perceptive vision of the role played by families and professionals

نویسندگان

  • M. Pilar García
  • Dolores Madrid
  • Rafael Galante
چکیده

Título: Menores y Sistema Aumentativo o Alternativo de Comunicación (SAAC). Visión comprensiva de las familias y del papel de los profesionales. Resumen: Este estudio refleja la realidad de 8 menores, sus familias y 11 profesionales de Atención Temprana (AT) que trabajan con ellos en el proceso de aprendizaje de uso y generalización de un Sistema Aumentativo o Alternativo de Comunicación (SAAC), buscando respuestas que aporten mayor calidad de vida a sus protagonistas. Se ha realizado bajo el paradigma cualitativo y la recogida de datos a través de grupos focales en cinco sesiones de una duración de hora y media a dos horas. Los resultados obtenidos muestran las emociones y sentimientos que surgen en los entornos familiares cuando a la diversidad funcional se suma las dificultades para la comunicación en los diferentes entornos en los que se desarrollan estos menores, aportaciones que deben realizar los profesionales de los diferentes contextos buscando respuestas a las necesidades y demandas de los menores y sus familias. Los datos ponen de manifiesto la importancia de una intervención dirigida a potenciar atribuciones de competencia y capacitar a las familias para neutralizar las atribuciones generadoras de estrés, buscando soluciones de la forma más autónoma posible. Las reflexiones de los profesionales expresan la importancia de conocer las necesidades de los menores y sus familias para colaborar en la búsqueda de soluciones. Palabras clave: Familia; profesionales; SAAC; competencia; recursos. Abstract: The present study accounts for the experience conducted with eight children, their families and the professionals in charge of the Early Intervention Program (EI) working with them during the whole process of learning, training and generalizing of an Augmentative or Alternative Communication System (AACs) used to try and find resources that will improve the quality of life of these participants. A qualitative paradigm has been applied and the data collection has been performed using focal groups during five one-hour-and-a-halves to two-hour sessions. Results obtained show the emotions and feelings arising within the family circles when other communication problems between the different environments where these children interact are added up to the functional diversity; professional experts in many contexts need to provide resources to respond to these necessities and requests originated by these children and their families. The resulting data underline the importance of the intervention used to enhance the attribution of competencies that capacitates families and neutralizes the attributions generating stress situations to finally find the most autonomous solutions to these issues. Reflections provided by professionals show the importance of knowing better the necessities of these children and their families for them to provide an efficient collaboration during the resource-finding process.

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تاریخ انتشار 2017